In short
xShare is a three-year Horizon Europe project envisioning everyone sharing their health data in European Electronic Health Record Exchange Format (EEHRxF), with a click-of-a-button – the xShare or yellow button- to be featured across health portals and patient apps, allowing people to exercise their data portability rights under GDPR. In a simple and straightforward way, individuals will be able to share their health data in harmonised, structured and coded formats across digital health services.
Project description
In digitalisation of the healthcare sector, interoperability remains a persistent challenge. Fragmented systems hinder the seamless exchange of vital health data, impeding patient care and stifling research efforts. As such, GDPR obligations further complicate matters, as individuals struggle to navigate the complex landscape of data sharing consent. With this in mind, the EU-funded xShare project will develop an innovative button for health portals and patient apps that can be used to effortlessly share personal health data in compliance with the GDPR. The xShare aims to establish common specifications and elements, fostering collaboration among stakeholders. From hospital networks in Italy to national portals in Greece and Ireland, xShare promises a future of interconnected healthcare systems.
Scienano is Task partner in Work Package (WP) 4 on Public Health and Cross Border Health Threats, WP5 on European EHRxF in Clinical Research: Core Set, and IPS-R, and WP7 on Capacity Building, Cybersecurity & Privacy, and Innovative Procurement.
More specifically, Sciensano will participate in the following tasks:
- A survey of public health data sets across Europe, to identify and map existing data registries, align data models and terminologies.
- Need and gaps analysis in population health, to identify missing data needed for public authorities.
- Provide guidance for harmonization of data sets needed to support use cases for EHRxF HIDs.
- Demonstrate reference dashboards equipped with AI capabilities and high-performance computing.
- Engage in an open call to involve public agencies in the harmonization of their metadata and health data sets.Capacity building activities for data portability, data literacy, and data quality
