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Home > Biblio > Can.Heal Deliverable 12.2 – Citizen and Patient Perspectives on Oncogenomic Data Reuse

Can.Heal Deliverable 12.2 – Citizen and Patient Perspectives on Oncogenomic Data Reuse [1]

Sci. report, recommendat°, guidance doc., directive, monograph

English

SCIENSANO

Authors

Chloé Mayeur [2]; Marlies Saelaert [3]; Wannes Van Hoof [4]

Keywords

  1. ethics [5]
  2. public engagement [6]
  3. public health genomics [7]
Article written during project(s) : 
CAN.HEAL Building the EU Cancer and Public Health Genomics platform [8]

Abstract:

This deliverable formulates ethical recommendations for a trustworthy framework for genomic data reuse in oncology based on the perspectives of patients, citizens, and Can.Heal professionals. It highlights areas where the values of the general public and professionals align, yet also where they might differ, indicating ethical points of discussion to consider in the EU Cancer and Health Genomics Platform.
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Associated health topics:

Source URL:https://sciensano.be/en/biblio/canheal-deliverable-122-citizen-and-patient-perspectives-oncogenomic-data-reuse

Links
[1] https://sciensano.be/en/biblio/canheal-deliverable-122-citizen-and-patient-perspectives-oncogenomic-data-reuse [2] https://sciensano.be/en/people/chloe-mayeur/biblio [3] https://sciensano.be/en/people/marlies-saelaert/biblio [4] https://sciensano.be/en/people/wannes-van-hoof/biblio [5] https://sciensano.be/en/biblio?f%5Bkeyword%5D=37970&f%5Bsearch%5D=ethics [6] https://sciensano.be/en/biblio?f%5Bkeyword%5D=38353&f%5Bsearch%5D=public%20engagement [7] https://sciensano.be/en/biblio?f%5Bkeyword%5D=1164&f%5Bsearch%5D=public%20health%20genomics [8] https://sciensano.be/en/projects/building-eu-cancer-and-public-health-genomics-platform