A systematic review of studies that estimated the burden of chronic non-communicable rare diseases using disability-adjusted life years, Oliveira, Claudia Cruz, Charalampous Periklis, Delaye Julien, Grad Diana Alecsandra, Kolkhir Pavel, Mechili Enkeleint A., Unim Brigid, Devleesschauwer Brecht, and Haagsma Juanita A. , Orphanet Journal of Rare Diseases, Jan-12-2024, Volume 19, Issue 1, (2024)