<?xml version="1.0" encoding="UTF-8"?><xml><records><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Meeussen,K.</style></author><author><style face="normal" font="default" size="100%">Van den Block,L.</style></author><author><style face="normal" font="default" size="100%">Echteld,M.</style></author><author><style face="normal" font="default" size="100%">Nicole Boffin</style></author><author><style face="normal" font="default" size="100%">Bilsen,J.</style></author><author><style face="normal" font="default" size="100%">Viviane Van Casteren</style></author><author><style face="normal" font="default" size="100%">Deliens,L.</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Older people dying with dementia: a nationwide study</style></title><secondary-title><style face="normal" font="default" size="100%">Int.Psychogeriatr.</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">2008</style></keyword><keyword><style  face="normal" font="default" size="100%">Aged</style></keyword><keyword><style  face="normal" font="default" size="100%">ALL</style></keyword><keyword><style  face="normal" font="default" size="100%">an</style></keyword><keyword><style  face="normal" font="default" size="100%">approach</style></keyword><keyword><style  face="normal" font="default" size="100%">approaches</style></keyword><keyword><style  face="normal" font="default" size="100%">Area</style></keyword><keyword><style  face="normal" font="default" size="100%">Areas</style></keyword><keyword><style  face="normal" font="default" size="100%">article</style></keyword><keyword><style  face="normal" font="default" size="100%">AS</style></keyword><keyword><style  face="normal" font="default" size="100%">Belgium</style></keyword><keyword><style  face="normal" font="default" size="100%">Brussels</style></keyword><keyword><style  face="normal" font="default" size="100%">care</style></keyword><keyword><style  face="normal" font="default" size="100%">Cognitive</style></keyword><keyword><style  face="normal" font="default" size="100%">Common</style></keyword><keyword><style  face="normal" font="default" size="100%">Communication</style></keyword><keyword><style  face="normal" font="default" size="100%">Components</style></keyword><keyword><style  face="normal" font="default" size="100%">data</style></keyword><keyword><style  face="normal" font="default" size="100%">Death</style></keyword><keyword><style  face="normal" font="default" size="100%">Decision Making</style></keyword><keyword><style  face="normal" font="default" size="100%">Dementia</style></keyword><keyword><style  face="normal" font="default" size="100%">Diagnosis</style></keyword><keyword><style  face="normal" font="default" size="100%">distress</style></keyword><keyword><style  face="normal" font="default" size="100%">ELDERLY</style></keyword><keyword><style  face="normal" font="default" size="100%">elderly people</style></keyword><keyword><style  face="normal" font="default" size="100%">electronic</style></keyword><keyword><style  face="normal" font="default" size="100%">End-of-life</style></keyword><keyword><style  face="normal" font="default" size="100%">general</style></keyword><keyword><style  face="normal" font="default" size="100%">GENERAL PRACTITIONER</style></keyword><keyword><style  face="normal" font="default" size="100%">general practitioners</style></keyword><keyword><style  face="normal" font="default" size="100%">GP</style></keyword><keyword><style  face="normal" font="default" size="100%">IS</style></keyword><keyword><style  face="normal" font="default" size="100%">IT</style></keyword><keyword><style  face="normal" font="default" size="100%">journal</style></keyword><keyword><style  face="normal" font="default" size="100%">Less</style></keyword><keyword><style  face="normal" font="default" size="100%">Life</style></keyword><keyword><style  face="normal" font="default" size="100%">MEDV</style></keyword><keyword><style  face="normal" font="default" size="100%">Mild</style></keyword><keyword><style  face="normal" font="default" size="100%">mortality</style></keyword><keyword><style  face="normal" font="default" size="100%">Network</style></keyword><keyword><style  face="normal" font="default" size="100%">older</style></keyword><keyword><style  face="normal" font="default" size="100%">ON</style></keyword><keyword><style  face="normal" font="default" size="100%">Palliative Care</style></keyword><keyword><style  face="normal" font="default" size="100%">Paper</style></keyword><keyword><style  face="normal" font="default" size="100%">Patient</style></keyword><keyword><style  face="normal" font="default" size="100%">patients</style></keyword><keyword><style  face="normal" font="default" size="100%">People</style></keyword><keyword><style  face="normal" font="default" size="100%">physical</style></keyword><keyword><style  face="normal" font="default" size="100%">practitioner</style></keyword><keyword><style  face="normal" font="default" size="100%">Practitioners</style></keyword><keyword><style  face="normal" font="default" size="100%">PROCESSES</style></keyword><keyword><style  face="normal" font="default" size="100%">proxies</style></keyword><keyword><style  face="normal" font="default" size="100%">Proxy</style></keyword><keyword><style  face="normal" font="default" size="100%">PSYCHOLOGICAL</style></keyword><keyword><style  face="normal" font="default" size="100%">PSYCHOLOGICAL DISTRESS</style></keyword><keyword><style  face="normal" font="default" size="100%">registration</style></keyword><keyword><style  face="normal" font="default" size="100%">Research</style></keyword><keyword><style  face="normal" font="default" size="100%">Sample</style></keyword><keyword><style  face="normal" font="default" size="100%">study</style></keyword><keyword><style  face="normal" font="default" size="100%">Symptom</style></keyword><keyword><style  face="normal" font="default" size="100%">Symptoms</style></keyword><keyword><style  face="normal" font="default" size="100%">Term</style></keyword><keyword><style  face="normal" font="default" size="100%">treatment</style></keyword><keyword><style  face="normal" font="default" size="100%">Universities</style></keyword><keyword><style  face="normal" font="default" size="100%">university</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2012</style></year><pub-dates><date><style  face="normal" font="default" size="100%">30/5/2012</style></date></pub-dates></dates><number><style face="normal" font="default" size="100%">1591</style></number><volume><style face="normal" font="default" size="100%">24</style></volume><pages><style face="normal" font="default" size="100%">1581 - 1591</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">ABSTRACTBackground: Large-scale nationwide data describing the end-of-life characteristics of older people with dementia are lacking. This paper describes the dying process and end-of-life care provided to elderly people with mild or severe dementia in Belgium. It compares with elderly people dying without dementia.Methods: A nationwide retrospective mortality study was conducted, via representative network of general practitioners (GPs) in 2008 in Belgium, with weekly registration of all deaths (aged &gt;/= 65) using a standardized form. GPs reported on diagnosis and severity of dementia, aspects of end-of-life care and communication, and on the last week of life in terms of symptoms that caused distress as judged by the GP, and the patients' physical and cognitive abilities.Results: Thirty-one percent of our sample (1,108 deaths) had dementia (43% mildly, 57% severely). Of those, 26% died suddenly, 59% in care home, and 74% received palliative treatment, versus 37%, 19%, and 55% in people without dementia. GP-patient conversations were less frequent among those with (45%) than those without (73%) dementia, and 11% of both groups had a proxy decision-maker. During the last week of life, physical and psychological distress was common in both groups. Of older people with dementia, 83% were incapable of decision-making and 83% were bedridden; both significantly higher percentages than found in the group without dementia (24% and 52%).Conclusions: Several areas of end-of-life care provision could be improved. Early communication and exploration of wishes and appointment of proxy decision-makers are important components of an early palliative care approach which appears to be initiated too infrequently</style></abstract><custom1><style face="normal" font="default" size="100%">431</style></custom1><section><style face="normal" font="default" size="100%">1581</style></section></record></records></xml>