Qualitative study to assess citizens’ perception of sharing health data for secondary use and recommendations on how to engage citizens in the EHDS

This document is the final report from the TEHDAS iCitizen Work Package (Work Package 8) and presents citizen recommendations on how they want their data to be used and their desired role in the future European Health Data Space (EHDS). The recommendations summarise the key findings of the qualitative analysis of citizens’ contributions to the Healthy Data consultation. The aim of the public consultation was to better understand citizens’ perceptions and expectations regarding the secondary use of their health data and their role in its governance. These citizen recommendations are also informed by the Healthy Data literature review, expert interviews and national and European stakeholder workshops.