Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease., Wood, Libby, Bassez Guillaume, Bleyenheuft Corinne, Campbell Craig, Cossette Louise, Jimenez-Moreno Aura Cecilia, Yi Dai, Dawkins Hugh, Diaz Manera Jorge Alberto, Dogan Celine, et al. , Orphanet J Rare Dis, 2018 Sep 05, Volume 13, Issue 1, (2018)