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International collaboration to improve knowledge on myotonic dystrophy type 2
Publication Type: Peer reviewed scientific article Authors: Peric, Stojan; Ivanovic, Vukan; Ashley, Emma-Jayne; Esparis, Belen; Campbell, Craig; Wenninger, Stephan; Monckton, Darren; Marini-Bettolo, ...
Affiliation to the Treat-NMD Consortium Using an Agreed Minimum Dataset Allows Small Registries and Large Registries to Collaborate Together
Stojanovic; Stojan Peric; Marjan Cosyns; Sopiko Digmelashvili; Damjan Osredkar; Tanja Golli; Harumasa Nakamura; Massanori Takahashi; Anne-Berit Ekström; Anna Lusakowska; Anna Kaminska; Marie De Antonio; ...
Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease.
Bjorn Lindvall; Elizabeth Luebbe; Anna Lusakowska; Radim Mazanec; Giovanni Meola; Lianna Orlando; Masanori P Takahashi; Stojan Peric; Jack Puymirat; Rakocevic-Stojanovic, Vidosava; Miriam Rodrigues; ...