Search results - 8 results
How to Deal with Uninformed and Poorly Informed Opinions of Citizens? A Critical Approach to Online Public Engagement
instructive, provided that one searches for the implicit message participants try to convey related to their values, fears, or needs. Since there will always be less informed or uninformed citizens, that would ...
Do genomic passports leave us more vulnerable or less vulnerable? Perspectives from an online citizen engagement
an online citizen engagement on genomic information usage, including a question on a genomic passport for all. The inductive thematic analysis of participants’ contributions highlighted vulnerability ...
The role of the perceived environment for recreational walking among adults in socioeconomically disadvantaged situations: A study using walk-along interviews
saturation with a purposeful convenience sampling of 38 PSEDS (25-65y/o) to identify local environmental factors affecting RW. A subsample of 22 participants joined a focus group (n = 4) to categorize the ...
Healthy Data, an online citizen consultation about health data reuse – intermediate report
not. Overall, citizens also believed that the chosen safeguards should depend on the level data has been anonymised. Finally, some participants believed a certain form of citizens’ control was legitimate ...
Citizens’ perception of and engagement with health data secondary use and sharing in Europe – a literature review
the governance of health data, or their participation in research projects. These models varied depending on the degree of involvement and power that citizens had on the decisions and actions taken. ...
Stakeholders' interviews- citizen engagement in health data secondary use and sharing: Summary report
Data Space Joint Action Abstract: Within the framework of their participation in the Joint Action “Towards a European Health Data Space”, the Health Data Hub, Sciensano and the NHS Confederation ...
My DNA, everybody's business? A citizen forum on the use of genomic information in society
negative attitude towards genomics will determine the societal support for the implementation of genomic technologies and individual willingness to participate in genomic screening, research and care. Every ...
Citizens' conceptions of the genome: Related values and practical implications in a citizen forum on the use of genomic information
Publication Type: Peer reviewed scientific article Authors: Chloé Mayeur; Wannes Van Hoof Source: Health Expectations, Volume 24, Issue 2 (2021) Keywords: citizen participation genomic data ...