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Résultats de la recherche - 5 results
Citizen-centred approach to public engagement on the ELSI of health technologies
engagement; methods; transparency; trust; ethics Abstract: Citizen engagement on ethical, legal, and societal issues (ELSI) of health technologies is a relatively recent but growing field with a wide variety of ...
Mapping European research networks providing health data: results from the InfAct Joint Action on health information.
Publication Type: Peer reviewed scientific article Authors: Brigid Unim; Elsi Haverinen; Eugenio Mattei; Flavia Carle; Andrea Faragalli; Rosaria Gesuita; Martin Thissen; L A Abboud; Tiziana ...
Belgian citizens’ attitudes towards genomic data sharing. Results of the online DNA debate
with genomics. The trust and engagement of citizens concerning genomics and its ethical, legal and societal issues (ELSI) are thus critical. Sciensano set up an online DNA debate to investigate Belgian ...
The Belgian DNA Debate: An Online Deliberative Platform on the Ethical, Legal, and Social Issues of Genomics
about their perspectives on genomics and its associated ethical, legal, and social issues (ELSI) to enable them to co-create with experts a society-supported framework in genomics. Methods A Belgian ...
Final report: MY DNA, EVERYBODY’S BUSINESS? Qualitative analysis of the belgian citizen forum on the use of genomic information
in 2018- 2019 on the ethical, legal and societal implications (ELSI) surrounding the use of genomic information in healthcare. The goal is to allow 32 citizens to look at the place of the genome in ...