- Bedoelde u
- rodriguez, miriam
Zoekresultaten - 4 results
International collaboration to improve knowledge on myotonic dystrophy type 2
Chiara; Walker, Helen; Voháňka, Stanislav; Cumming, Kleed; Łusakowska, Anna; Hodgkinson, Victoria; Marjan Cosyns; Rodrigues, Miriam; Yiu, Eppie; Mazanec, Radim; Stevenson, Tanya; Kostera-Pruszczyk, Anna; ...
Collaborative data collection by TREAT-NMD Registries to support post-marketing surveillance in Spinal Muscular Atrophy
Publication Type: Scientific poster, presentation or proceeding Authors: Miriam Rodrigues; JoAnne Bullivant; Victoria Hodgkinson; TREAT-NMD Registry Curators; Marlène Jagut; Volker Straub; Nathalie ...
Affiliation to the Treat-NMD Consortium Using an Agreed Minimum Dataset Allows Small Registries and Large Registries to Collaborate Together
Publication Type: Scientific poster, presentation or proceeding Authors: Richard Roxburgh; Miriam Rodrigues; Victoria Hodgkinson; Lawrence Korngut; Benedikt Schoser; Federica Montagnese; Stephan ...
Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease.
Bjorn Lindvall; Elizabeth Luebbe; Anna Lusakowska; Radim Mazanec; Giovanni Meola; Lianna Orlando; Masanori P Takahashi; Stojan Peric; Jack Puymirat; Rakocevic-Stojanovic, Vidosava; Miriam Rodrigues ...