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Zoekresultaten - 4 results
International collaboration to improve knowledge on myotonic dystrophy type 2
Publication Type: Peer reviewed scientific article Authors: Peric, Stojan; Ivanovic, Vukan; Ashley, Emma-Jayne; Esparis, Belen; Campbell, Craig; Wenninger, Stephan; Monckton, Darren; Marini-Bettolo, ...
Collaborative data collection by TREAT-NMD Registries to support post-marketing surveillance in Spinal Muscular Atrophy
Goemans; Anna Ambrosini; Craig Campbell Source: TREAT-NMD conference, TREAT-NMD, Leiden, The Netherlands (2019) Keywords: Data collection post-marketing surveillance SMA TREAT-NMD Abstract: Spinal muscular ...
Affiliation to the Treat-NMD Consortium Using an Agreed Minimum Dataset Allows Small Registries and Large Registries to Collaborate Together
Guillaume Bassez; Hannah Murray; Helen Walker; Craig Campbell; Myotonic Dystrophy TREAT-NMD Working Group Source: IDMC12, IDMC, Gothenburg, Sweden (2019) Keywords: Belgium neuromusculars diseases registry ...
Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease.
Publication Type: Peer reviewed scientific article Authors: Libby Wood; Guillaume Bassez; Corinne Bleyenheuft; Craig Campbell; Louise Cossette; Aura Cecilia Jimenez-Moreno; Dai, Yi; Hugh Dawkins; ...