Pedagogical Toolbox Healthy Data

The goal of the Healthy Data e-consultation is to deliberate together with citizens about how health data should be governed in the European Union. We are looking to co-create an ethical and societal framework for the use of health data beyond individual care. The only way we can build a health data space that will respect the values and principles of citizens, is when enough citizens are willing to have their say. The platform is built around three steps: inform, deliberate, produce. Therefore, we provide neutral and engaging information, we provide questions, cases and other discussion materials to stimulate deliberation and we give citizens the opportunity to share their opinion and produce their own recommendations. These contributions will be analyzed in depth and form the basis of the ethical framework for the European Health Data Space. We believe that classrooms offer an ideal circumstance to inform young citizens, deliberate with them on important societal issues and in this project we give them the opportunity to make their voices heard.