Search results - 5 results
Orphanet Belgium activity report 2023
Publication Type: Sci. report, recommendat°, guidance doc., directive, monograph Authors: Annabelle Calomme Source: Sciensano, Brussels, Belgium, p.70 (2024) Keywords: Orphanet Belgium Orphanet ...
Orphanet Belgium activities: January 2024 newsletter on Orphanet and OD4RD projects
Publication Type: Popular-science publication (vulgarising publication) Authors: Annabelle Calomme Source: Newsletter, Sciensano, Brussels, Belgium (2024) Keywords: OD4RD Orphanet Rare diseases ...
A systematic review of studies that estimated the burden of chronic non-communicable rare diseases using disability-adjusted life years
coverage and the group of disease(s) they focused on, the methods and data input sources used and estimated DALY per case. Results In total, 533 titles were screened, and 18 studies were included. These ...
An EU task force to assess the burden of rare diseases
Marcus Maurer; Brecht Devleesschauwer; Juanita Haagsma Source: Nat Med, Volume 29, Issue 3, Number 517 (2023) Keywords: Advisory Committees European Union Humans Rare diseases Health Topics: Burden of ...
The health and economic burden of haemophilia in Belgium: a rare, expensive and challenging disease
calculation were derived using generic quality-of-life tools such as SF-6D from the SF-36 (36-item Short-Form Health Survey; for adults) and KINDL (generic quality-of-life instrument; for children) compared to ...