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A systematic review of studies that estimated the burden of chronic non-communicable rare diseases using disability-adjusted life years
cancers, and cost-effectiveness/benefit studies. Two researchers independently screened the identified records and extracted data from the final included studies. We used the Guidelines for Accurate and ...
Annual report Belgian Cystic Fibrosis Registry 2016
national neonatal screening program so far. Within the year, eight deaths were reported (four of them in transplanted patients) with age at death ranging from 20.5 to 44.8 years while 17 patients benefitted ...