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A systematic review of studies that estimated the burden of chronic non-communicable rare diseases using disability-adjusted life years
Abstract: Background Initiatives aiming to assess the impact of rare diseases on population health might be hampered due to the complexity of disability-adjusted life years (DALY s) estimation. This study ...
The health and economic burden of haemophilia in Belgium: a rare, expensive and challenging disease
in order to estimate the lifetime haemophilia burden for the 2011 birth-year Belgian cohort. The health burden was initially expressed in terms of disability-adjusted life years (DALY s), the number of ...