Zoekresultaten - 2 results

Orphanet Belgium activities: January 2024 newsletter on Orphanet and OD4RD projects

Publication Type: Popular-science publication (vulgarising publication) Authors: Annabelle Calomme Source: Newsletter, Sciensano, Brussels, Belgium (2024) Keywords: OD4RD Orphanet Rare diseases ...

The health and economic burden of haemophilia in Belgium: a rare, expensive and challenging disease

calculation were derived using generic quality-of-life tools such as SF-6D from the SF-36 (36-item Short-Form Health Survey; for adults) and KINDL (generic quality-of-life instrument; for children) compared to ...

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