Zoekresultaten - 3 results
A systematic review of studies that estimated the burden of chronic non-communicable rare diseases using disability-adjusted life years
included studies that determined the burden of CNCRD listed on the Orphanet’s and/or the Genetic and Rare Diseases information center (GARD) websites. We excluded communicable and occupational diseases, rare ...
An EU task force to assess the burden of rare diseases
Marcus Maurer; Brecht Devleesschauwer; Juanita Haagsma Source: Nat Med, Volume 29, Issue 3, Number 517 (2023) Keywords: Advisory Committees European Union Humans Rare diseases Health Topics: Burden of ...
The health and economic burden of haemophilia in Belgium: a rare, expensive and challenging disease
evaluation of haemophilia in the future. Health Topics: Burden of disease Fardeau de la maladie Ziektelast Rare diseases Maladies rares Zeldzame ziekten Service: Information sanitaire Gezondheidsinformatie ...