Zoekresultaten - 2 results
Belgian neuromuscular diseases registry (BNMDR): Annual report 2017
patients were registered, resulting in a Belgian prevalence estimate of 50.8 neuromuscular patients per 100,000 population. Patients’ recruitment was better in the north than in the south of the country. ...
Early stages of building a rare disease registry, methods and 2010 data from the Belgian Neuromuscular Disease Registry (BNMDR).
Belg, Volume 115, Issue 2, p.97-104 (2015) Keywords: Adult Belgium cross-sectional studies Female Humans Male middle aged Neuromuscular Diseases Online Systems prevalence Rare diseases REGISTRIES ...