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Zoekresultaten - 2 results

A systematic review of studies that estimated the burden of chronic non-communicable rare diseases using disability-adjusted life years

Brecht Devleesschauwer; Juanita A. Haagsma Source: Orphanet Journal of Rare Diseases, Volume 19, Issue 1 (2024) Keywords: Disability-Adjusted Life Years methods population health Rare diseases REVIEW ...

The health and economic burden of haemophilia in Belgium: a rare, expensive and challenging disease

in order to estimate the lifetime haemophilia burden for the 2011 birth-year Belgian cohort. The health burden was initially expressed in terms of disability-adjusted life years (DALY s), the number of ...

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